The Woodward News

September 3, 2013

PKD Awareness Day set

Woodward News

Woodward, Okla. —  The Polycystic Kidney Disease Foundation has announced that Sept. 4 is PKD Awarness Day according to a U. S. Senate Resolution sponsored by Sen. Roy Blunt and co-sponsored by Sens. Benjamin Cardin, Barbara Mikulski, Marco Rubio and Charles Schumer.

This day was chosen to kick off the Walk for PKD season, which starts that next weekend. PKD Awareness Day will be devoted to raising awareness of this life-threatening, genetic disease and the critical need for treatments and a cure. Even though thousands in the U.S. are affected, the disease is relatively unknown, so raising awareness about PKD is vital. The more people that know about PKD, the closer we can get to treatments and a cure.”

 PKD is a genetically transmitted disease that can potentially damage the kidneys, liver, and pancreas which leads to a variety of additional health problems including high blood pressure, heart attacks, strokes, brain aneurysms, and renal failure requiring dialysis or an organ transplant.  There is no cure.  There is no specific medication to treat the disease, only medications to treat the symptoms and consequences of Polycystic Kidney Disease.

 Funds raised by and for the PKD Foundation go to medical research seeking to understand the disease and find successful treatments to slow down or stop the progression of the disease.  Fundraising events are currently taking place across the United States including in Oklahoma.  Volunteers conduct fundraisers in their communities then the Oklahoma Chapter of the PKD Foundation holds its annual Walk for PKD in Tulsa or Oklahoma City.   This year’s Walk for PKD will take place at the Stars and Stripes Park at Lake Hefner in Oklahoma City on Saturday, September 28th from 9 am to 1 pm.

 A PKD fundraiser is currently taking place in Woodward.  Donations of $5 to the PKD Foundation get the donors’ names put in a drawing for several great donated prizes.  The Grand Prize is two tickets to an upcoming OKC Thunder NBA basketball game in Oklahoma City (date TBA), plus a signed NBA basketball by Kevin Durant, and signed photograph of former OKC Thunder player, James Harden.  The second name drawn will receive a signed photograph of the OU Women’s Basketball coach, Sherri Coale.  The third name drawn will receive a limited edition signed photograph of former OSU football player, Barry Sanders.  The fourth name drawn will receive a remote-controlled LEGO excavator kit.  The four winners will be announced on October 1st.

 Tickets for these prizes are available at the following businesses in Woodward:  Razien Metals Company at 1002 Main Street, The Gazebo at 801 Main Street, Persimmon Creek at 906 Main Street, and Devine’s at 2121 Oklahoma Avenue.

 For more information you may contact PKD Patient and Volunteer, Elise Solloway at 580-254-4722.

PKD Info:

Two forms are:

• autosomal dominant PKD, a form that usually causes symptoms in adulthood

• autosomal recessive PKD, a rare form that usually causes symptoms in infancy and early childhood

Symptoms and signs:

• pain in the back and lower sides

• headaches

• urinary tract infections

• blood in the urine

• cysts in the kidneys and other organs

Diagnosis is obtained by

• ultrasound imaging of kidney cysts

• ultrasound imaging of cysts in other organs

• family medical history, including genetic testing

Treatments include

• medicine to control high blood pressure

• medicine and surgery to reduce pain

• antibiotics to resolve infections

• dialysis to replace functions of failed kidneys

• kidney transplantation