The Woodward News

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July 12, 2013

Woodward boy gets AmTryke

Woodward, Okla. — A rare disease hasn't slowed little Talon Waibel down.  Especially not now that he's got some new wheels.

It's been a difficult year for Talon and his family.

Last April, the Waibel family's home was destroyed by a tornado.  But then in May, the family received an even more devastating blow when his mother and father Becky and Chris Waibel took the boy to the doctor for a routine checkup.

Concerns from the pediatrician led to a visit with a specialist and at 9-months-old Talon was diagnosed with Mucopolysaccharidosis I (MPS-I), more commonly known as Hurler's Syndrome.   

According to the MPS Society website,  www.mpssociety.org, MPS-I is a genetic lysosomal storage disease caused by the body's inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells, according to MPS Society website.  Without these enzymes the cells do not perform properly and may cause damage throughout the body.  Based on the nature of the disease, signs and symptoms tend to develop as the child gets older and more cells become damaged.

Treatment for this disease includes enzyme replacement therapy and a bone marrow transplant, both of which Talon received last year.  But in preparation for his bone marrow transplant, the infant had to undergo chemotherapy.

"He was throwing up for 70 days straight," from the chemo, Becky Waibel said.

 However, on Wednesday, July 10, the now 23-month-old Talon was all smiles when he was presented with a new tricycle.

Talon's tricycle is a special therapeutic model known as an AmTryke, because it is sponsored by AMBUCS, which is a community service organization that focuses on projects that create mobility and independence for people with disabilities.  In fact, Talon's AmTryke was donated to him by the members of the Woodward Mid-Day AMBUCS Chapter, which has given out  around 60 of the therapeutic tricycles throughout it's 25 years of service in the community.

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